This is an archive of papers published by the staff and faculty of Fox Chase Cancer Center. For questions about content, please contact Talbot Research Library
Last updated on
Bailey A , Govia I , McKenzie J , Richards S , Coleman S , Tulloch-Reid MK , Ragin C , Ashing K
Staff and participant perceptions of optimal recruitment and retention strategies for biomedical cohort studies in the Caribbean
Cancer Causes Control. 2021 May 7 :1-9
PMID: 33961148 PMCID: PMC8103112
AbstractPURPOSE: To identify staff and participants perspectives of best practices that facilitate achieving enrollment and retention targets in biomedical cohort studies in Caribbean populations. METHODS: Eight focus group discussions (FGDs) were held with research stakeholders including research (i) nurses/study supervisors, (ii) field staff/data collectors, and (iii) rural and urban participants of the Third Jamaica Health and Lifestyle Survey (a national NCD risk factor survey with biospecimen collection) to capture qualitative data on experiences with recruitment, training, retention challenges and potential solutions or strategies for strengthening future efforts. RESULTS: Our findings indicate that trained, experienced study staff with good interpersonal communication skills enhanced the proficiency of field operations and attracted study participants. Targeted community and stakeholder engagement alongside strong support from the coordinating center increased the reach and efficiency of the data collectors. Timely participant feedback, gender-appropriate approaches, and socioeconomic balance enhanced equitable enrollment and retention of participants of cohort studies particularly the hard to reach groups. CONCLUSION: Well-functioning research teams using traditional and social media promotion, applying gender-appropriate and personalized approaches together with strategies for reaching the less accessible socioeconomic groups, are effective for recruiting and retaining members of a Caribbean cohort. These strategies may also enhance the recruitment of other Black populations in the Diaspora including the US and Caribbean into biomedical studies including cancer research.
Notes1573-7225 Bailey, A Orcid: 0000-0001-5270-5887 Govia, I McKenzie, J Richards, S Coleman, S Tulloch-Reid, M K Ragin, C Ashing, K R01 MD013347/MD/NIMHD NIH HHS/United States R01 MD013347-01/Foundation for the National Institutes of Health/ Journal Article Cancer Causes Control. 2021 May 7:1-9. doi: 10.1007/s10552-021-01438-w.