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Wen KY , Hu A , Ma GX , Fang CY , Daly MB
Information and communication needs of Chinese American breast cancer patients: perspectives on survivorship care planning
J Community Support Oncol. 2014 Dec;12(12) :439-445
PMID: 25811036    PMCID: PMC4370226   
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BACKGROUND: The existing knowledge on the survivorship experiences of Chinese American breast cancer survivors (CABCS) has arisen largely from aggregated data across multiethnic or multicancer studies that have focused on quality of life. Little is known about Chinese American perspectives and preferences for survivorship care. OBJECTIVE: To examine the experiences of CABCS to better understand their information and communication needs and their preferences for survivorship care plans (SCPs). METHODS: 16 CABCS, aged 37-72 years, were recruited through community-based organizations in the Northeast United States to participate in one-on-one telephone interviews about their breast cancer survivorship experience. The semistructured interviews were conducted in Mandarin, Cantonese, or English. Two investigators transcribed and translated the audio recordings into English and analyzed the interview transcripts using established methods of qualitative content analysis. RESULTS: Three main themes were identified through analysis of interview transcripts: the need for evidence-based and culturally and linguistically appropriate health information; the role of language or communication barriers and culture in accessing care and communicating with providers; and preferences for SCP elements and format. LIMITATIONS: The sample may not be representative of the entire population of CABCS. CONCLUSIONS: The findings provide insight into the information and communication needs and SCP preferences of CABCS. Understanding the cultural nuances that underlie these needs and preferences is critical for improving CABCS's quality of life after treatment for cancer. SCPs that incorporate Chinese-language resources and address the unique cultural needs of this population should be developed and they should include information about diet and nutrition as well as traditional Chinese medicine.
Wen, Kuang-Yi Hu, Angela Ma, Grace X Fang, Carolyn Y Daly, Mary B P30 CA006927/CA/NCI NIH HHS/United States U54 CA153513/CA/NCI NIH HHS/United States J Community Support Oncol. 2014 Dec;12(12):439-445.